National Hepatitis C Patient Council

We believe that people living with and affected by hepatitis C have an expertise that is of equal importance to that of professionals, and that they should be involved in every decision made that affects people living with hepatitis C in England. With the introduction of fast acting oral treatments and a new way of delivering hepatitis C treatment through Operational Delivery Networks, a structured forum to facilitate your involvement is more important than it has ever been.

What is the National Hepatitis C Patient Council?

The National Hepatitis C Patient Council is a network of groups of people living and affected by hepatitis C in 22 Operational Delivery Network areas, who come together locally and nationally to have a say in decisions that affect them. In particular we are keen to ensure that within each Operational Delivery Network governance structure there is patient representation, feeding in the real life experience of what is happening in their area and advocating for change where needed.

The aim of the National Hepatitis C Patient Council is to:

  • Give people living in England who have been diagnosed with hepatitis C a voice.
  • Become more informed in how hepatitis C is managed and aware of any upcoming opportunities, developments or events.
  • Influence the planning of services for people diagnosed with hepatitis C.
  • Offer a patient perspective to the planning, development and review of services in local services including the Operational Delivery Networks (ODN) that control hepatitis C treatment in the English NHS.
  • Develop effective communication with both people living with hepatitis C and with working groups across England.