Campaigning in England

Key statistics

  • An estimated 160,000 people in England have hepatitis C
  • Whilst data collection is poor, only around 50% are thought to be diagnosed and around 27,000 are likely to be diagnosed and in touch with services
  • Over the last decade, hospital admissions from hepatitis C-related liver disease have nearly tripled and deaths have doubled

Our work

The Hepatitis C Trust campaigns for improvements in awareness, testing and diagnosis for hepatitis C, and fights for access to treatment and high quality care for people affected by hepatitis C in England. Our policy and parliamentary team works hard to develop patient-centred policy solutions and to communicate these to decision-makers, including by making representations on behalf of people affected by hepatitis C to policymakers within NHS England and Public Health England.

The Hepatitis C Trust runs the secretariat for the All-Party Parliamentary Group on Liver Health, a cross-party group of MPs and Peers who have come together to tackle the growing problem of liver disease and its major causes – hepatitis C, obesity, alcohol and hepatitis B. The APPG holds meetings and events and publishes reports – including the impactful Inquiry report into Outcomes in Liver Disease – to raise awareness of liver disease in Parliament and in the media. Keep up to the date with the work of the APPG, and browse the group’s reports, at www.appghep.org.uk.

Your voice as a hepatitis C patient is crucial to making sure that policy decision-makers fully understand the issues around hepatitis C, and of the need for improvements in the quality of care for those living with the virus. The louder the patient voice, the more chance we have of successfully improving services.

Join us

Currently, The Hepatitis C Trust is campaigning against the unprecedented national cap on access to new treatments that has been imposed by NHS England, despite their being approved as cost-effective by the National Institute for Health and Care Excellence (NICE). The Trust also continues to call for a national strategy to be released aimed at tackling hepatitis C in England, following the abandonment of the national improvement framework for hepatitis C that had been under development since 2014.

If you are experiencing delays in accessing treatment for your hepatitis C or would like to see improvements in the quality of care pathways for hepatitis C, get in touch with The Hepatitis C Trust and help us by letting your elected representatives and local decision-makers know about your experiences, and what you need them to do to improve services.

We have created a Patient Activist Toolkit, which is a guide to the action you can take to raise awareness of hepatitis C and persaude your elected representatives of the need to eliminate the virus. You can download the toolkit below.