Latest news

10 months 3 weeks ago
We have been receiving queries on our helpline from people who have, or have had hepatitis C and who are concerned about the risks of coronavirus (Covid-19). We would like to reassure people that there is no specific guidance and/or additional steps that need to be taken, aside from the guidance that has been provided already to the general public – you can read the latest information and updates about Covid-19 here.
10 months 3 weeks ago
Today the expert panel on the psychosocial impact for those that received infected blood and blood products gave evidence and elaborated on the findings they had made in their report.  They provided a highly detailed and thorough account of all the potential areas where people infected and their partners and families have been affected in this way, whether it was how their diagnosis was handled, how information about their illness was conveyed, dealing with bereavement and many more.
11 months 3 days ago
Sir Brian Langstaff started the first public hearing this year, by saying they had so far heard 189 oral witnesses and that he had personally read 1000 written statements.    This is an ongoing process with more evidence still to come and more arriving all the time.  As awareness of the Inquiry grows, more people get diagnosed and want to come forward as they are outraged by their late diagnosis and appalled to hear of the history of this tragedy.  And of course, there are many that have been waiting for years to have their story, and of those they have lost, finally heard. 
11 months 2 weeks ago
Last week, Public Health England published a new report on substance misuse services in prisons, which reported that 35% of people starting treatment in prison substance misuse services between 2018 and 2019 are either currently injecting (19%) or have done so in the past (16%).
12 months 2 hours ago
A new report released today by The Hepatitis C Trust highlights the charity’s pioneering use of peer-to-peer support. People who have lived experience of hepatitis C deliver workshops and one-to-one support to increase awareness of hepatitis C, encourage people to access testing, and support engagement with treatment. This forms a key part of the drive to eliminate the virus as a public health concern by 2030.
1 year 1 month ago
Our helpline will be closed for Christmas from 4.30pm on Friday 20th December 2019 to 10.30am on Monday 6th January 2020. All callers who leave a message or email helpline@hepctrust.org.uk will be contacted on return. We wish all of our contacts a merry Christmas and look forward to providing support and information in the New Year.
1 year 1 month ago
‘Mr AW’  Today’s hearings began with an anonymous witness, ‘Mr AW’. Mr AW was diagnosed with leukaemia in December 1992, aged 18. As part of his treatment Mr AW received blood transfusions, before being declared free of leukaemia in April 1993. Ten years later, Mr AW received a letter from Luton & Dunstable Hospital asking him to attend the Haematology Department, where he was informed that he had hepatitis C. 
1 year 2 months ago
Jyrna Jyrna’s telling of her and her late husband’s experience of infected blood was brave, raw and extremely emotional. Sitting beside her late husband’s brother at the Inquiry hearings on Thursday, she narrated her story with incredible composure and earnestness, holding the full attention and sympathy of the packed Inquiry room.
1 year 2 months ago
Overall the hearings were sad and hard hitting, particularly when you see how being given infected blood has affected these people and how the ripple effects from the loss of those that have passed is still creating misery. It never ceases to amaze me to hear of the poor treatment of those infected.   Martin Martin described how his mum had to watch his dad die slowly and how she was his carer for many years. It was very emotive when he said “you don’t have to win to be a hero – my dad is my hero”  
1 year 2 months ago
Mr AR   He was a retired doctor with haemophilia and was infected with hepatitis C via Factor VIII. Discussion took place around his father (who was also a doctor) and how the practice of one unit of blood being given to women giving birth many years ago, may not have been essential.   He qualified in 1974 and went to Birmingham and worked there in 1975 and at that time they were only allowed to use cryoprecipitate for patients. When he later went to Queen Elizabeth Hospital he taught patients how to inject Factor VIII for themselves.  

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